Not Dead Yet UK Statement on Mr Noel Conway’s legal case

***Updated 16 July, 2017***


While we empathise with Mr Conway in his attempts to avoid ang end-of-life suffering we do not agree that this is an inevitable experience of life and death. We also strongly maintain that changing the law to allow physician Assisted Suicide will endanger the lives of the UK’s many ill and disabled people who, with the right amount of appropriate care and support can and do achieve a peaceful passing. Palliative care is already seriously underfunded in the U.K. and we believe that legalising Assisted Suicide will negatively impact on an already unestimated service. More importantly, this type of support allows disabled and ill people to live full and enjoyable lives, with no fear of unnecessary death from coercion, error or human prejudice holding them back.

We also believe that legalising Assisted Suicide will negatively impact on how continuing illness and the lives of disabled people are viewed as a part of contemporary society. We know from our own extensive and varied experiences and research that the medical knowledge and facilities already exist to ensure a peaceful death for the majority of people who die as a result of illness and we campaign for those to become commonplace in all palliative care situations. We have seen no evidence to support the claim that the only way to ensure a so-called ‘good death’ is to utilise Assisted Suicide and instead choose to campaign for better end-of-life care through person centred palliative and medical support. While we acknowledge that mistakes are made during end-of-life we do not believe that potentially compounding those errors by adding serious risk to the rights and funding of those who choose to live is the best or safest way forward. Coupled with the fact that medical professionals often make errors when giving patients an accurate timescale with prognosis we believe that rather than ending suffering, the legalisation of physician Assisted Suicide will add to it.

We passionately challenge the notion of ‘dignity’ as used by Mr Conway and his supporters at Dignity in Dying. As disabled people and their allies, many who rely on daily practical, physical and medical assistance to survive we suggest instead that dignity is simply a perception in the eye of the beholder and is therefore as changeable and unique as each individual person. It is not illness and disability that effect a person’s perceived ‘dignity’ but the way that society values or devalues their existence as opposed to those with no impairment. It is not a real state. It is also too often wrongly associated with the loss of physical ability. As long as disability, continuing & terminal illness alone are considered enough reason to want to die then we are certain that there will be no equality to protect us in death.

These beliefs have compelled us to launch a legal intervention to Mr Conway’s attempts to change the law. We do not seek to punish him nor do we want anyone to suffer during their life or death. But we do not accept that the only way to guarantee a ‘good death’ is to risk the lives of others and instead will continue to campaign for truly equal rights for all ill and disabled people so that living with impairment is no longer perceived as ‘undignified’ and death by illness is not uniquely viewed as a ‘bad death’.

We support people everywhere who continue to fight for access to appropriate care and support in life as well as effective and appropriate palliative care and support in death.


16 July, 2016

Juliet Marlow
Not Dead Yet UK


5 replies on “Not Dead Yet UK Statement on Mr Noel Conway’s legal case”

Social justice is a very complex issue. This posting made in 2012 really is ahead of its time. Juliet Marlow, writing in 2016 February, states the position very clearly and concisely too. I had an operation in February 2016, and I might have died during a 10 hour op, and then later I developed sepsis. But here I am, and I pop up all over the place, when I need to. I am not dead yet. So I support NOT DEAD YET UK. I am not for euthanasia or assisted suicide. AnnieB

If I understand the argument against assisted dying presented here, it is that it threatens the lives of other people. I just don’t see how.

Excellent! Thank you.

Allow me to add that permitting medical killing of the vulnerable disabled, the suicidal and the terminally ill sets a socially engineered trap, in which individual interests freely and legally gain access to a public resource (a health care system that provides unconditional specialized care for the vulnerable disabled, the suicidal and the terminally ill) and proceed to change it from unconditional palliative care to optional care together with the option of medically assisted suicide.

A tragedy of the commons will unfold as those in most need of genuine on-going care are pressured subtly to accept the cheaper swifter option. This will lead eventually to depletion of the shared resource—the end of a truly universal, unconditional system of care for the vulnerable disabled, the suicidal and the terminally ill. A gradual reduction of specialists, hospices, palliative care resources and research dedicated to the needs of the vulnerable disabled, the suicidal and the terminally ill is therefore a typical ‘externality’ – i.e., the unintended and negative consequence of private decisions that ends up affecting everyone.

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