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An Immodest Proposal by Don Brand

Many of you will have heard the New Years Day interview that Baroness Jane Campbell had with Matthew Parris when she was guest editor for the BBC Radio 4 Today programme. Our supporters expressed considerable anger around Parris’s central assertion that the economy could not sustain the high costs of looking after dependent older and disabled people. In this thoughtful article, Don Brand questions Parris’s assertion.

An Immodest proposal

Dean Swift and the Scandal of Poverty in Ireland

In 1729, Jonathan Swift, Dean of St Patrick’s, Dublin, published a pamphlet he called “A Modest Proposal”. In reasoned tones, he set out his novel solution to the problems of extreme poverty in Ireland. The pamphlet’s full title is A Modest Proposal for Preventing the Children of Poor People From Being a Burthen to Their Parents or Country, and for Making Them Beneficial to the Publick.

Swift’s proposal is that the impoverished Irish might ease their economic troubles by selling their children as food for rich gentlemen and ladies. “A young healthy child well nursed, is, at a year old, a most delicious nourishing and wholesome food, whether stewed, roasted, baked, or boiled; and I make no doubt that it will equally serve in a fricassee, or a ragout.”

Swift knew his proposal would give offence to his readers. He intended to shock them into recognising the severe effects of grinding poverty on the Irish people among whom he lived: the desperate measures it provoked, the evil consequences in blighted lives, starvation and criminality.

But Swift also managed to convey, to those with ears to hear, sustained irony. Alongside his savage case for refined cannibalism, he follows the style of the Roman satirist Juvenal in purporting to dismiss the solutions he really believes in.

Therefore let no man talk to me of other expedients: Of taxing our absentees at five shillings a pound: Of using neither clothes, nor household furniture, except what is of our own growth and manufacture: Of curing the expensiveness of pride, vanity, idleness, and gaming in our women: Of introducing a vein of parsimony, prudence and temperance: Of learning to love our country, Of being a little cautious not to sell our country and consciences for nothing: Of teaching landlords to have at least one degree of mercy towards their tenants. Lastly, of putting a spirit of honesty, industry, and skill into our shop-keepers………

Therefore I repeat, let no man talk to me of these and the like expedients, ’till he hath at least some glympse of hope, that there will ever be some hearty and sincere attempt to put them into practice.

Matthew Parris and “Useless People” leading “Fruitless Lives”

Before Christmas, the commentator Matthew Parris published an article in the Spectator, setting out his own proposal for tackling a central problem of an ageing population: the rising costs of meeting their health and care needs, placing a growing burden on the economically active. His article appeared under the title Some day soon we’ll all accept that useless lives should be ended. When interviewed by Baroness Campbell on the Today programme on New Year’s Day, Parris’s attempt to defend his views was a fine example of the comedy of embarrassment.picture of Matthew Parris

It would be reassuring to think Matthew Parris sees himself as a latter-day Dean Swift, making his own Modest Proposal for our contemporary times. For Parris has looked into his crystal ball, foreseen rapidly rising numbers of disabled and older people, concluded the cost of their care will bankrupt the country, and come up with a radical solution.

He argues that the rising cost of health and care services for this growing number is well on the way to becoming unaffordable:

There are 11 million disabled people in Britain. As the proportion of our population disabled by old age increases, the figure can only rise. The result — we see it already as our health service struggles — is that an ever heavier burden falls on proportionately ever fewer wage-earning shoulders.

The mention of “wage-earning shoulders” blithely ignores the £17.5 billion income tax paid by pensioners. With the same reasoned tone as Swift, Parris walks us step by step towards his Modest Proposal. First, Kipling-like, he invokes the well-being of the tribe:

Tribes that handicap themselves will not prosper. As medical science advances, the cost of prolonging human life way past human usefulness will impose an ever heavier burden on the community for an ever longer proportion of its members’ lives. Already we are keeping people alive in a near-vegetative state. ………..Like socialist economics, this will place a handicap on our tribe. Already the cost of medical provision in Britain eats into our economic competitiveness against less socially generous nations.

 The sleight of hand embodied in that last sentence – how much is Britain’s economic competitiveness “eaten into” by medical costs, compared with, say, our low productivity rate? With which “less socially generous nations” is Parris comparing us? – continues in the next paragraph:

As costs rise, there will be a point at which our culture (and any culture) will begin to call for a restraining hand. I believe that when it comes to the cost of keeping very enfeebled people alive when life has become wretched for them, we’re close to that point.

So the case for euthanasia as a solution to excessive costs to the Exchequer is dressed up as a kindness to “very enfeebled people” whose life has become “wretched for them”. And the drastic shift of culture this entails is now presented with almost Marxist historical inevitability:

I don’t even say we should look more benignly upon the termination of life when life is fruitless. I say we will. We may not be aware that our moral attitudes are being driven by the Darwinian struggle for survival, but in part they will be. And just as we feel ourselves looking more sympathetically at those who wish to end it all, so we shall be (unconsciously) looking at ourselves in the same way. The stigma will fade, and in its place will come a new description of selfishness, according to which it may be thought selfish of some individuals (including potentially ourselves) to want to carry on.

Parris and Malthus

Thomas MalthusParris evidently believes he is saying something new, observing a phenomenon others have failed to perceive. But his basic argument is the same as that of Thomas Malthus more than 2 centuries ago about over-population. Malthus argued that unchecked population growth would outstrip the ability to feed people, and the solution lay in preventive or positive checks of one form or another. He believed in “positive checks”, which lead to ‘premature’ death: disease, starvation, war, resulting in what is called a “Malthusian catastrophe”. The catastrophe would return population to a lower, more “sustainable”, level.

Parris has simply created a special case of this general theory, arguing that unchecked growth of disabled and older people is already outstripping the means to treat, support and care for them. He’s not brought the food supply into the debate yet, but presumably his grotesque dystopian vision of large-scale euthanasia would be carried through “humanely” by gradually restricting the intake of food and drink allowed to the “useless” people. This system has already been piloted in The Liverpool Care Pathway.

Implementing the Parris Solution

It is said that every crisis represents an opportunity. How would Parris’s drastic solution be implemented? A process would be needed for selecting the people who are going to be shunted into this particular siding. One obvious mechanism would be application of NICE’s methodology of QALYs, but with a much lower tariff. NICE regards annual treatment costs of £30k per person as a reasonable value to put on a life. For “useless people” Parris would presumably want a much lower figure, preferably well below £10k.

The processing could be put out to tender. Several of the big-name firms versed in delivering public services for profit could make a good case for having the necessary skills (and friends in high places). Proper appeals machinery would also be required at several points in the process, perhaps through a Useless People’s Tribunal Service. As Parris evidently thinks other developed nations with ageing populations will see the logic of his argument and the attractiveness of his proposals, the Tribunal could quickly go international. Its Chair might well be willing to let the UK have the service at below cost, if it acts as a loss-leader for business with other rich nations.

Is there an alternative?

None of this might be necessary, of course, if instead of trying to eliminate the excess of people using the NHS and social care, we pursued greatly increased productivity and efficiency. This would involve producing better, more effective health and social care at significantly lower unit cost.

This could be helped by tackling three of the big dysfunctional features of the NHS: its inability to control the drugs bill, and blatant exploitation by the drugs companies; its toleration of entrenched protectionism by the main health professions; and its lack of a coherent research investment strategy. The allocation of research funding is based on a beauty contest of health conditions. The gross discrepancy between the NHS and social care in the levels of state research funding they receive is just one symptom of this lack of a strategy.

Lip service is regularly paid to these objectives; and Parris might echo the ironic doubts expressed by Swift about whether “there will ever be some hearty and sincere attempt to put them into practice.” But promoting them would surely be a better use of his genuine talents than continuing with his wrong-headed and nihilistic campaign to foster a climate in which mass euthanasia becomes a social good.

The intelligent man who spouts nonsense is a sad spectacle. The commentator who fails to connect the elimination of “useless” people with events in Europe 75 years ago has lost his moral compass. The normally astute journalist, frustrated that a slightly-built disabled woman consistently has better arguments than he does, makes a fool of himself as he blunders from one mistaken point to another untruth. Isn’t it time the referee stopped the fight?

 

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Dr Kevin Fitzpatrick OBE RIP

Baroness Campbell passed on the news that our close colleague and friend Dr Kevin Fitzpatrick OBE passed away on Thursday 14th January 2016.

In her note she said “It is with great sadness that I am writing to tell you that our dear colleague and friend, Kevin Fitzpatrick died last night in Swansea, surrounded by his family. You may have already heard about this tragic news but Kevin specifically asked me to let his NDY UK friends know when the time came. Kevin has been very private about his battle with cancer as he didn’t want others to worry about him or let his illness detract from his tireless work to prevent the legalisation of assisted suicide. Selfless to the end.

 

 I know Kevin will be greatly missed by all Kill the Bill campaigners. Missed for, among other attributes, his larger-than-life personality, intellectual rigour, vitality, humour and genuine warmth. A sad loss to all of us, and the thousands of  disabled people’s lives he touched as he fought for our humanity to be valued equally, no matter what our impairment or illness. The “NO Legalisation” has lost one of it’s  greatest advocates.”

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Baroness Campbell the Radio 4 Guest Editor

Welcome to 2016! I hope you had a brilliant Christmas holiday and have all your New Year’s resolutions in place! Good luck with them. As someone once said, “Dieting is easy, the tricky part is keeping the weight off!”

If you didn’t know already, Baroness Campbell acted as guest editor of the New Year’s Day edition of the Radio 4 Today programme. If you weren’t up in time here’s a link Today programme. An interesting mix of stories and comment. One of her interviewees was the former Conservative MP Matthew Parris. He suggests that assisted suicide is just a matter of evolution and, therefore, it’s inevitable that it will become an acceptable solution to ageing, illness and impairment. He responded to his programme interview with another article – this time putting forward the view that cost and usefulness need to be considered when defining the quality of life and best use of resources.  Have a look at his article and tell us what you think.

Matthew Parris Times Article

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Court allows woman with signs of consciousness to die

Landmark as Court of Protection rules food and fluids can be withdrawn from MS patient in “Minimally Conscious State”

A judge has ordered doctors to remove life-sustaining support from a multiple sclerosis (MS) patient, despite the fact that she is still partially conscious.

In a landmark ruling, Mr Justice Hayden said that a 68-year-old woman known only as Mrs N should have tubes which she relies on for nourishment and hydration removed, after describing her life as “profoundly humiliating”.

The decision led to fears about its implications, with one MP describing it as “bringing in euthanasia by the back door”.

Judicial Review Royal Courts of Justice 16th November

]Many of you will remember that earlier in the year at a short hearing in London, Nikki and Merv Kenward were granted permission to proceed with the judicial review of the DPP’s new policy on the grounds that she had made the law more liberal and that the legality of the change should be scrutinised.  We have heard the hearing is to take place at the Royal Courts of Justice in London on the 16th of November from 9 am

Nikki and Merv are calling for people to show support by attending a rally on the day. Dignity in Dying are expected to have a presence, the Humanist Society may also turn up.

If you can help in any way or want more details please contact Nikki or Merv 07780 476 714 or email mervkenward@gmail.com

 

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UK MP’s throw out Assisted Suicide Bill

MPs have rejected plans for a right to die in England and Wales in their first vote on the issue in almost 20 years. In a free vote in the Commons, 118 MPs were in favour and 330 against plans to allow some terminally ill adults to end their lives with medical supervision.

After a passionate debate, MP’s overwhelmingly voted against with many saying that vulnerable people would have no protection and would be put at great risk.

Under the proposed legislation people with fewer than six months to live could have been prescribed a lethal dose of drugs, which they had to be able to take themselves. Two doctors and a High Court judge would have needed to approve each case.

Not Dead Yet UK wants to place on record its grateful thanks to all those who supported our campaign. We are a tiny organisation with very limited resources but we have determination, passion and commitment and these won the day.

We can now reflect on a job well done and think about the future in a much more positive way.

We will keep you informed of any new developments on this subject and will be discussing the future of Not Dead Yet UK. If you have any thoughts regarding our future direction please let us know.

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#SupportNotSuicide Demonstration – 11 September

09:00 – 2:30pm, Friday 11th September.

Old Palace Yard (Opposite the House of Lords), Parliament, Westminster, London SW1A 0AA.

JOIN THE FIGHT TO PROTECT OUR LIVES!

Not Dead Yet UK supported by many other Disabled People’s Organisations will protest against Rob Marris’ MP Assisted Suicide Bill while it is being debated in the House of Commons. We need to stop the Bill now – it will be much more difficult at a later stage.

We need EVERYONE WHO CAN to support us in responding peacefully, in large numbers, to this campaign so that Parliament is left in no doubt that assisted suicide is not the answer.

Many people who are also personally affected by the Assisted Suicide Bill’s contents cannot join us outside the house of Commons. There are other ways you can help. Contact you MP now and share your concern.

WHY PROTEST AGAINST THE ASSISTED SUICIDE BILL?

Many ‘terminally ill’  and disabled people are deeply concerned about the proposed changes to the law on assisted suicide. We will not gain rights, we will lose rights! If the Assisted Suicide Bill becomes law, our lives will be less protected, and our sense of vulnerability will be increased. Disabled People’s Organisations the BMA and many others are opposed to this Bill and are agreed that what disabled people need is the resources to live as independently as possible and the best palliative care possible when we need it.

We shall be gathering between 9:00 and 9:30am ready for the MP’s arrival at 10am.

The vote is due to take place at 2:30pm and and we will remain until we know the result.

Remember you will be outside all day so come prepared! We can provide T Shirts, placards unless you have your own!

Please share this notice, join us on 11th Sept.

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Urgent Call to action. We need your support now.

Reclaiming Our Futures Alliance Statement

We are opposed to legalisation of assisted suicide. It will remove equality and choice from disabled people and further contribute to our oppression. If the Assisted Dying Bill is passed, some Disabled and terminally ill people’s lives will be ended without their consent, through mistakes, subtle pressure and abuse.  No safeguards have ever been enacted or proposed that can prevent this outcome – an outcome which can never be undone.

With two Assisted Dying bills currently before parliament, it is really important that Deaf and Disabled people and our organisations speak out loudly against the legalisation of assisted suicide and raise awareness of the threat this poses to disability equality.

Our message is that we want support to live not die. At a time when essential support is being taken away from us, when the challenges we face are exponentially growing as a direct result of adverse government policy, it is more dangerous than ever to introduce legislation which encourages suicide as a solution to the barriers Disabled people face.

We say: give Disabled people a right to independent living before a right to suicide.

Below are different ways that DDPOs and Disabled campaigners can take action and get involved. We realise that not everyone has the time to do everything but anything you are able to contribute to the campaign would be valued.

DDPOs

  • Sign up to the ROFA statement (above). It is extremely important we can evidence that Disabled people and our organisations are opposed to assisted suicide to counter the arguments of those in favour of the bill who present it as progressive legislation. Email your organisation’s name to ellen.clifford@inclusionlondon.co.uk.
  • Write to or arrange to meet your local MP (even over the Summer they will be receiving and responding to mail). You can download a template letter here. Please send us copies of any responses you receive.
  • Tell your members about the campaign and how they can get involved – you could adapt this information for a newsletter article or website post or include the Assisted Dying bills on your next campaigns/speaking up meeting agenda. Support as many of your members to make contact with their MP over this issue as possible.
  • Dates for your diary – publicise the events happening below, send representatives and support your members to attend.

Individuals

  • Contact your MP – you can use our template letter here. Please send us copies of any responses you receive.We are also encouraging Disabled people to meet their MPs to put forward your views in person. Some MPs are organising public meetings to canvass the views of their constituents – check their websites to see if your MP is one of these.
  • If you have a personal story about this subject which informs your view on it and which you are willing to share please let us know. We are also looking for Disabled people who are happy to speak to the media about why we oppose legalisation of assisted suicide.

Dates for your diary

  • 13 August 2015 (1.30 – 5.00pm)
    Assisted Suicide Briefing Day for DPOs and Disabled campaigners
    organised by Inclusion London, Not Dead Yet UK and Disabled People Against Cuts (DPAC).
  • 11 September
    Not Dead Yet UK/DPAC Protest.
    Gather outside Parliament to show our opposition to Marris’ bill while it is being debated inside. Meet Old Palace Yard (opposite the House of Lord’s) from 9am.

Is your MP one of the named supporters of Marris’ bill?

DPAC is encouraging campaign groups to organise protests outside the constituency offices of those MPs who have put their name to Marris’ Assisted Dying bill. If you would like support to organise a local protest or for more information contact Mail@dpac.uk.net

(See http://www.publications.parliament.uk/pa/cm201516/cmhansrd/cm150624/debtext/150624-0001.htm#15062462000011 to check if your MP is named.

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What is the real motive of people making spurious claims about disabled people’s support for euthanasia/assisted suicide?

In Real disability activists and masquerades I countered the spurious claim that 75% of disabled people support assisted suicide/euthanasia. The so-called ‘poll’ from which that nonsense figure ‘appeared’ was the British Social Attitudes (BSA) Survey 2007. That survey yielded no information of the kind, and did not even mention: assisted suicide or euthanasia or ‘dignity’. So the claim, based on that work, had to be simple propaganda.

A follow-up poll, commissioned by promoters of euthanasia/assisted suicide law in Britain, asked four questions, three of which were simplistic one-liners. But ‘Question’ 1 was a long rehearsal of the proposals of the Falconer Bill. It could and should have been divided into at least 7 different questions. So to ask ‘Do you agree with assisted dying?’ at the end of that  much detail was also sheer nonsense – no-one could be clear what they were answering – and especially when the word ‘suicide’ was replaced by ‘dying’ to confuse matters.

This continues to beg the question ‘What is the real motive of people making spurious claims about disabled people’s support for euthanasia/assisted suicide?’ The pro-euthanasia/assisted suicide lobby continue to claim (now 80%) support amongst disabled people, but consistently ignore the majority opinion as expressed through Disabled People’s Organisations (DPOs), that such laws are not just dangerous, they threaten disabled people most of all.|

The other rather stupid claim they make is that a press to legalise euthanasia/assisted suicide has nothing to do with disability matters – yet they constantly play on the most severely disabled people as ‘piteous’ throughout their use of the media to promote their aims. This contradicts their every protest that disabled people will be safe, especially now when the most recent publicly shared deaths are not of terminally ill people, nor of disabled people but those people who declare they are so afraid of becoming disabled they would rather die. We who have lived disabled lives for many years can only watch as those with virtually no experience of being disabled reinforce the worst of these false messages ‘Being disabled is a fate worse than death’. We wonder who has been advising these people, leading them to believe this is, or must be true, and to take their lives?

Constantly portraying disabled people, and severely disabled people, as the most ‘pitiful’ examples of people who need such a law is more than false – it is a morally abhorrent when it leads people to kill themselves based on the fear of being disabled.

The pro-euthanasia/assisted suicide lobby wilfully ignore any evidence that does not suit their aim. Anyone involved in survey work will say tell you that the answers you get in polls depends on how you word your questions. The evidence of the Com Res Poll published in the Telegraph July 19 2014 showed categorically that the slight change to more honest language results in a massive drop in those supporting assisted suicide down immediately to 43%. The poll conducted by SCOPE around the same time reflected much more accurately the fears disabled people really do have about such legislation.

Therefore, it remains somewhat beyond belief that a lobby for assisted suicide can claim any view on behalf of all disabled people, never mind a massive majority in favour of their proposed law.

NDY UK on the other hand, like NDY US, is a network of disabled people working largely pro bono who have been mandated to represent the views of many disabled people. And still to-date, the majority of DPOs (UK, US, Australia, New Zealand, as well as others) – are either entirely against or have huge reservations about such a law.

Those involved with Not Dead Yet UK have a long and collective history of representing large numbers of disabled people’s rights through democratic structures and processes, and continue to seek the views of those numbers of disabled people. The world of legitimate disability activism is required to do this: it is called democracy.

But the promoters of euthanasia/assisted suicide have a clear strategy: keep repeating the lie that a majority (disabled people or otherwise) want this law, and the public will begin to believe it is so. But where is the evidence? The real evidence?

There actually isn’t any.

And the evidence we do have goes against their claims, even in their preferred model operating in Oregon and Washington State, where most people say they want to die because they do not want ‘to be a burden on others’ (40% in Oregon, 61% in Washington State).

At the tip of reality, people with dementia are dying in Belgium as are people with mental health issues – people on medication known to bring suicidal ideation or a 24 year old woman with no other health issues, as we saw just recently. Disabled new-born babies in Groningen Holland are being euthanised, and all those in the USA who ‘feel’ themselves to be a burden.

They pro-euthanasia/assisted suicide lobby know full-well that any such law in Britain will mean that innocent people will die, and first among equal candidates are disabled people.

I have repeated over some years now that any law must, by its nature, be general, covering every citizen. Which is also why it makes no sense for the pro-lobby to make a special case for disabled people. The law will be there for not just the fewer than one thousand, but each and every one out of the six hundred thousand who die in the UK every year.

But then where are the voices of the majority who do not wish to commit suicide? Where do they find justice – democracy? And the families of the five thousand, mostly younger men who commit suicide every year? How are their voices heard in this moral scrum for supposed individual choice? Despair is the end of all choice: when someone says, for whatever reason – disability or financial ruin or one of the thousand other things that drive people to despair – ‘I cannot go on’ that is not a choice – that is the end of all choices and sometimes life itself.

Oscar Wilde famously said public opinion was ‘the attempt to organise the ignorance of the community, and to elevate it to the dignity of physical force’; Russell said that ‘One should respect public opinion in so far as is necessary to avoid starvation and to keep out of prison, but anything that goes beyond this is voluntary submission to an unnecessary tyranny’; Churchill thought there was no such thing as public opinion; onlypublished opinion.

Relying on polls for any opinion but especially on such a grave subject is not only dangerous but downright foolish.

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Not Dead Yet Vlog – July 2015

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