Categories
Assisted dying assisted suicide Disability Meacher Bil

Let’s Get Writing!

Hello once again.

Thank you for your response to our call for action. Tremendous!

Now we need more from you. Can you write to a member of the House of Lords?

As you know the debate on the Assisted Dying Bill takes place in the House of Lords on the 22nd of October so it is vital that as many disabled people as possible write to say why they are worried about a change in the law as proposed in the Meacher Bill.

Your email or letter doesn’t need to be more than one page or a couple of paragraphs.

We are urging you all to speak up because our voice needs to be heard in this vitally important debate. Remember Nothing About Us Without Us!

We have suggested some ideas to use. If you have any difficulties contact us at info@notdeadyetuk.org

Thank you


Dear (Name),

I’m/We are writing to you about the Assisted Dying Bill which has its second reading in the House of Lords on 22nd October 2021. 

I/We really need your help in influencing other members of the House of Lords to reflect carefully on this Bill which will affect the lives of thousands of disabled and terminally ill people. As a disabled person, I am deeply concerned about the impact of the changes being proposed in the Meacher Bill. I/We am/are asking you to oppose the Bill.  

(You could choose any one of these issues to include in your note)

– Non-existent and badly drafted safeguards to the Bill

– The inevitable change in the relationship between Doctor and Patient (Do no harm.)

– Potential abuse by Doctors of believing their patient will be better off dead (because they are subject to the same discriminatory attitudes as the rest of society)

– Possible coercion from family members

– Discrimination, for example between those with physical and/or learning disabilities.

– Slippery slope (for example other countries expanding the law to include non-terminal conditions and disabled people)

You only need to choose one or two of the above which directly affects your situation and/or that of someone who you advocate for.

If it helps, you can send your letters to us and we will address and send them on your behalf to info@notdeadyetuk.org

Categories
Assisted dying assisted suicide Disability Uncategorized

Urgent Action Notice

We Must Act by 8th October 2021!

Not Dead Yet UK urgently needs your help and there are easy ways here to join in and speak up.

We’re fighting for our lives again and the opposition will win if we don’t act now.

Why?

The Assisted Dying Bill goes back to the House of Lords on Friday 22nd October 2021 for its second reading when there is a big debate.

The Lords don’t realise how many people are very worried about this Bill.

The Bill is about making assisting suicide legal, including when people are not dying yet – that’s why our opponents are trying to change the law.

The safeguards in the bill do not say assisted suicide must be a last resort and ONLY for people who are terminally ill

End of life care is underfunded. This means people who are terminally ill don’t always get the help they need and they sometimes suffer.

But the bill is not about relieving suffering – it’s about ending many people’s lives early. Killing people isn’t the way to fix this problem.

We have a little time left to show how many of us (especially those with degenerative conditions, and long term illness), would rather see the government improve palliative care than make an assisted suicide Bill.

You can read more about NDY UK’s objections to the Bill here:

 https://notdeadyetuk.org/we-need-help-to-live-not-to-die/

What do we want?

We know life can be a struggle – but we know someone’s suffering can be relieved without resorting to killing them.

Disabled people risk being killed because decent health care for us is seen by our opponents as too difficult, or too expensive to organise.

For example, young disabled people with mental health trauma are already being offered assisted suicides by doctors in other countries. In Canada, their government finance department has calculated that they save over £8,000 for every person killed.

We think the focus should be on improving the health and care support available – palliative care doctors and nurses are our allies in this and agree. After all, doctors and nurses have been supporting us to live!

We know many people who rely on life-saving health care are afraid of what will happen if assisting suicide becomes normalised, instead of trying to give us support for all our lifetime.

Those of us who can find a way to speak out need to advocate for many more people who can’t.

Click here to see the Ways You Can Help

Take Action Now!

We must fight for assistance to live – not assistance to die.

Help us ask the government to invest in life, not death 

Individuals.

  1. Share this notice everywhere you can.
  2. Then share your views.

At the moment the Lords don’t know how many people are worried about this Bill.

We need to tell them!

Send us a one minute video or audio, or a short written message about your concerns – we will share these with Lords.

You can send your video or audio file to us at:

Video Dropbox link

https://www.dropbox.com/sh/8qby4797hfz8mnm/AAAQ0P3D_RvZPTk8c9j9Xi1Ya?dl=0

You can send us an email at info@notdeadyetuk.org

Unsure what to say?

Here are some ideas and questions to help people get started – you could answer any of these.

Start your message by giving your name and your impairment if you can.

Why does this Bill which would make assisted suicide legal worry you?

Do you think the Bill is safe? If not say why you are worried.

How will it affect your health or social care?

How will it affect your mental well-being?

Will people treat you differently if assisted suicide is available?

Will it undermine your rights?

How will it affect other people?

Do you think there will be a widening of who this law would apply to after it came in?

Background:

Black and white photo of someone with their head in their hands

Nobody chooses to feel so desperate that they want to commit suicide.

We all need to be able to choose a decent life and then have support to die comfortably, peacefully, and with the people who matter to us when our time eventually comes.

We know people are often unsupported and many will unnecessarily feel they have no choice but to die by suicide because of unmet care needs. It doesn’t need to be this way. We shouldn’t be ok with it.

Support to live a better life is not offered as a choice in this bill.

Investment in better palliative care is not a choice in this bill.

Our lives are worth living and we deserve a good quality of life – not a beastly choice between suffering or being put down like a pet with expensive health needs.

Discrimination

The recent Covid 19 pandemic has highlighted how disposable our lives are to this government.

There have been numbers of cases reported of disabled and older people having Do Not Attempt Resuscitation notices applied to them, without consent. 

Many of us were formally ruled out of the right to intensive care support, in advance.

More than a million of us weren’t added to shielding lists.

Many learning disabled people living in shared housing died because of the lack of safe support and protection.

Suicides in our community have increased.

This is the worst time in modern history to offer people suicide instead of real help!

It’s About Us – Without Us

Cartoon of disabled people holding a banner with "Nothing about us without us" on it.

The opinions of the wider public show they want assisted suicide. But they may have no or little experience of the real lives of the disabled people this law will apply to. They do not understand or know about the many struggles that we overcome every day. They find it difficult to believe that our lives are meaningful.

We do know this – but views from people directly affected are not being heard – we need to speak up together! Our views should be central – because it’s about us.

No disabled people’s organisations have ever campaigned FOR this. Only against.

We believe that the majority view is that we cannot trust this erosion of our rights – please help us prove that is what many of you think.

More about public opinion and statistics are here:

https://notdeadyetuk.org/lies-damned-lies-and-statistics/

Categories
Assisted dying assisted suicide Disability

BMA Goes Neutral

Doctors and medical students at the BMA annual representative meeting on the 14th of September passed, by a narrow majority, a motion which said: ‘In order to represent the diversity of opinion demonstrated in the survey of its membership, the BMA should move to a position of neutrality on assisted dying including physician-assisted dying.’

The motion was carried by 49 per cent of representatives, with 48 per cent against and 3 per cent abstaining.

This supersedes the association’s previous policy of opposing assisted dying, which had been in place since 2006. Being neutral means the BMA will not support or oppose a change in the law.

Separately, the BMA representative body passed another motion calling for ‘robust conscience rights’ to be included in any future legislation on assisted dying in the UK, meaning healthcare workers should be able to object conscientiously to participating in assisted dying.

The move to a position of neutrality comes after the association polled its membership on the issue last year. When asked about a change in the law to permit doctors to prescribe life-ending drugs to eligible patients, the survey found:

  • 40% of surveyed members said the BMA should actively support attempts to change the law, one in three (33%) favoured opposition and one in five (21%) felt the BMA should adopt a neutral position
  • Half (50%) of surveyed members personally believed that there should be a change in the law to permit doctors to prescribe life-ending drugs. 39% were opposed, with a further 11% undecided.
Categories
Assisted dying assisted suicide Disability Meacher Bill

It’s impossible to make the choice to live – let alone thrive – if you’re only offered ways to die.

Dr Peter Scott Morgan gave a thoughtful and provocative presentation on behalf of NDY to the All-Party Parliamentary Group on Dying Well earlier this month.

He also wrote a couple of articles which have been published in The Times (£) I wrote this with my eyes — don’t tell me there’s no hope | Comment | The Times and inews  https://inews.co.uk/opinion/motor-neurone-disease-tech-assisted-dying-law-changes-1110154.

They’re both based on an article he wrote which we thought you might like to see, which is below.

All my life I’ve been passionate about equality and fairness. Consequently, when I heard of a move to update the law on assisted dying, I intuitively supported it; the intentions appeared so obviously reasonable, compassionate and humane.

But as a scientist, I’m trained to question even the obvious. So, I set about researching the Bill’s pivotal assumption that it’s possible to ensure informed choice without pressure. And I focused on motor neurone disease (MND) – the ‘cruellest disease’ and often-used justification for assisted suicide.

Fortunately, I’ve spent 30 years analysing complex social systems to predict unexpected consequences. And I also know a bit about MND because I have late-stage MND myself. Since 2017 doctors agreed I might die within six months. Now, I’m almost completely paralysed. Locked In. Allegedly, well past my death-best-before date.

My research uncovered three things.

It’s impossible to make an informed decision about your options if the medical community around you isn’t aware of how many exciting alternatives are emerging. Take my own instance. Thanks to pioneering NHS surgeries, continuous healthcare funding to look after me at home, and cutting-edge hi-tech that lets me speak in my original voice (and type this) using only my eyes – ‘invariably fatal’ MND may never get to kill me. Heart disease or dementia may do the honours. What’s more, my new capabilities will keep improving – in pace with computers.

Already, my overall quality of life is exceptional. I have love. I have fun. I have hope. I have dreams. I have a purpose. And I’ve found the trick to enjoying total paralysis is simply to imagine you’re in a luxury spa hotel and the maître d insisted you put your feet up and don’t move a muscle.

Mine is only one instance of rewriting the future of extreme disability. How many doctors tell their newly diagnosed MND patients that there’s such hope?

It’s impossible to make the choice to live – let alone thrive – if you’re only offered ways to dieLet’s give an example. To survive with MND long-term, you typically need an operation called a tracheostomy that lets a portable device breathe for you, as well as a cough-assist machine that clears your lungs of phlegm. In the UK, decisions on whether these options are available to you if you have MND are made locally not nationally. As a result, some who desperately want to live with MND are being told they must die instead – because of where they live. Less than 0.5% of people with MND in the UK receive this life-saving combination; in Japan, it’s over 30%. If I’d carried on living where I grew up, I’d have been refused treatment and died in 2019.

It’s impossible to ensure people make their decision without pressure when the current system is so unrelentingly negative.Just do an internet search of ‘MND’ and you’ll see what I mean. Avoiding coercion requires people to believe there are serious alternatives. Otherwise, it’s a sham ritual of decision making whose outcome was never really in question. Equally, I worry that many making this decision may be clinically depressed. Or so worried about the emotional and financial burden they’ll bring it feels an act of love to sacrifice themselves for the good of those remaining.

So, what do I now feel about the Bill to change the law on assisted suicide?

Confusion about the likelihood, let alone ‘inevitability’, of intolerable suffering; concern that we’re not ‘only shortening life by a few months’; worry there are insufficient protections against patients not being fully informed; uncertainty over being ‘terminal’ rather than simply ‘disabled’; anguish that some with an extreme disability may unnecessarily kill themselves in anticipation of what they incorrectly believe will inevitably happen; upset at the injustice of protecting an individual’s human right to choose to die, without putting the same effort, education and funding, into their right to thrive.

My intuition still says to update the law on assisted dying. But it must be equal and fair, otherwise, it becomes discriminatory euthanasia. Perhaps unknown to its designers, these proposals are biased towards unnecessarily culling the very people who would cost the most to keep alive and help thrive. That may be economically convenient. But it’s also cruel and uncivilised.

We’re better than that.

Dr Peter Scott-Morgan is a scientist researching breakthroughs in the clinical care of profound disability. He was diagnosed with motor neurone disease in 2017.

Categories
Assisted dying assisted suicide Disability Meacher Bil

We Need Help to Live Not To Die.

The briefing below lays out NDYUK’s concerns about the Meacher Bill and was used at the APPG for Dying Well webinar in July 2021


Assisted suicide bills introduced at Westminster and Holyrood

Baroness Meacher speaking in the Lords

Baroness Molly Meacher, the chair of Dignity in Dying, has introduced a bill in the House of Lords to make assisted suicide legal. The second reading is expected in the autumn.

MSP Liam McArthur has laid a similar bill before the Scottish Parliament.

Not Dead Yet UK’s view

Those who support the Meacher bill and campaigners outside Parliament use the term assisted dying. That is a euphemism. This legislation would give doctors legal powers to help patients kill themselves, to commit suicide.

We don’t claim to speak for all disabled people. Some of our members used to be in favour of changing the law.

Hands cupping and surrounding wooden figures of people

But we cannot see how safeguards will work well enough for us to feel confident that a change to the law will ensure disabled people are protected. This includes protection from coercion, from feeling a burden, from limited resources or from professionals subjectively deciding our lives are not worth living.

A review of how assisted suicide legislation is operating – in Oregon, Canada, Holland and Belgium – shows our fears are well-founded.

There are no organisations run by disabled people calling for the law to change.

Disabled people are living in difficult times. Cuts to social care and health services mean we don’t get the support that we need, and the pandemic has hit us harder than any other group. We can see the argument for a change in the law; but the current backdrop means now is not the time to support the Meacher bill.

We need help to live, not help to die. The law should remain as it is and protect the majority, rather than the few who might benefit from this bill.

The issue of ‘choice’

Freedom of choice has limits; such as where choice threatens the life or wellbeing of others. Legalising assisted suicide would pressure some of the most vulnerable people to end their lives. It would set a precedent for extending assisted suicide to other groups.

Signposts pointing in opposite directions one labelled individual the other Society

Society does all it can to prevent suicidal thoughts being enacted amongst the mentally ill and those who (temporarily) feel they cannot face the future.

Those seeking a change to the law say such ideals have no place when considering severely disabled and terminally ill people. If you can take your own life without assistance, society generally strives to protect you; but, if assistance to die is needed, they argue, it should be provided.

A fundamental shift in the relationship between doctors and patients.

Doctor holding a patient's hand.

The current blanket ban on assisted suicide provides absolute protection for disabled people. Medical staff cannot suggest an assisted suicide because it’s against the law. It makes the bond of trust between patients and doctors strong.

Legalising assisted suicide will irrevocably damage that relationship.

This debate is reinforcing negative perceptions of disability. It feeds into desires for a body beautiful and a perfect life untroubled by illness.

Guilt around being a burden on the family or society

Ill and disabled people may feel that they have a duty to die. Evidence from palliative care specialists shows most people who seek assisted suicide give ‘not wanting to be a burden’ as the main reason for seeking death.[1]

Wheelchair user at the foot of stairs while people go up leaving them behind.

Some 59% of those assisted in their suicides in Oregon in 2019 stated that being a ‘burden on family, friends or caregivers’ was one of their main reasons for requesting it.[2] Some 34% of those who were euthanised in Canada in 2019 cited ‘perceived burden on family, friends or caregivers’ as one of their main reasons.[3]

Other people will face pressure from relatives to seek help to end their lives. Such pressure might be subtle, but it will be there.

This bill raises deep concerns about how disabled people are viewed by society. Many people believe people they do not know would be better off dead because of their perceptions of illness and disability.

The role of good quality palliative and social care

Those who support this bill ignore the evidence from professional medical organisations that the prognosis of date of death is extremely difficult.[4]

There are no concrete rules to determine whether a person is terminally ill and in the last months of life, or whether they are ‘suffering unbearably’.

The choice of people nearing the end of life or who are suffering might be very different if they received the palliative and social care they should get. There is no right in Britain to palliative care.

Lots of words all jumbled up with Palliative Care standing out.

With modern medicine, the cause of much of the suffering is often not the illness itself – but unmet physical, mental or social care needs.

Nearly 14% of Canadians who requested legal medically assisted suicide in 2019 cited isolation and loneliness as a factor in their ‘choice’.[5]

The vast majority of doctors specialising in palliative and end of life care do not support a change in the current law[6]. We should listen to them.

The experience abroad: Evidence of the slippery slope

The idea that we would be embarking on a slippery slope is borne out by data and experiences from countries that have introduced so-called right-to-die legislation. Most laws abroad have been expanded and restrictions loosened.

The 2002 law in the Netherlands refers to ending ‘unbearable suffering’. However, the legalisation of euthanasia in the Netherlands “has contributed to a normalization of physician-assisted dying and… an expansion of its practice”.[7]

This expansion has involved acts of euthanasia that many would regard as abuses: the expansion of euthanasia from 12-year-old children to severely disabled new-born children[8];  and an expansion from voluntary euthanasia to non-voluntary euthanasia, particularly in cases of dementia where patients are incapable of giving consent[9] and chronic psychiatric patients, from 0 cases in 2009 to 60 cases in 2016[10].

Sign saying Danger Slippery slopes keep away.

Canada introduced assisted suicide legislation in December 2015. The Canadian Government now proposes that from March 2023 patients with mental illness alone and no other underlying issues can be given medical assistance to die.

Within six years the scope of the assisted suicide legislation in Canada has been amended twice. More people are now eligible and protections weakened.

A study in Belgium found that in only half the cases in Flanders were doctors assisting suicide reporting the death to a review committee as required by the law.[11] Around14% said they didn’t report a case either because they suspected the legal requirements had not been met, or they feared possible legal consequences.

Conclusion

Baroness Meacher’s bill addresses the needs of a small proportion of the population. And the cost is too high. The provisions of the bill, with their inadequate safeguards, open the door to dangers for disabled people which may literally prove fatal.

We don’t believe any parliamentarian will be able to put their hand on their heart and say ‘no disabled people will die because this bill is robust and fully protects everyone from any type of pressure or mistake’.

References

1 Hoffenberg R. Assisted dying. Clin Med 2006672–74. [PMC free article] [PubMed] [Google Scholar]

2 Oregon Health Authority Public Health Division, Center for Health Statistics Date written February 25, 2020

3 First Annual Report on MEDICAL ASSISTANCE IN DYING IN CANADA 2019

4 PMC Journal- A Systematic Review of Predictions of Survival in Palliative Care https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4999179/

[5] First Annual Report on Medical Assistance in Dying in Canada 2019

[6] BMA Survey on Physician-Assisted Dying 2020

[7] Koopman J and Boer, T, “Turning Points in the Conception and Regulation of Physician-Assisted Dying in the Netherlands”, American Journal of Medicine Vol 129, No 8, August 2016[7]

[8] https://www.proquest.com/openview/2f5f978f061e5f38e3bf34c2b4e06d50/1?pq-origsite=gscholar&cbl=47659

[9] BMC Medical Ethics https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-019-0401-y

[10] BMC Psychiatry https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-017-1369-0

[11] Reporting of euthanasia in medical practice in Flanders, Belgium: a cross-sectional analysis of reported and unreported casesBMJ 2010; 341 doihttps://doi.org/10.1136/bmj.c5174 (Published 05 October 2010)

Categories
Assisted dying assisted suicide Disability Meacher Bill

APPG on Dying Well Thursday 15 July – 5pm – Meeting in Parliament (online)

Dear Colleague,

The All-Party Parliamentary Group (APPG) on Dying Well promotes access to excellent palliative care and/ stands against the legalisation of assisted suicide in the UK.

I am delighted to invite you to our next online meeting on the 15th July at 5pm. This is an unmissable event and first of its kind, which will be of interest to parliamentarians with a range of expertise. Especially those with interests in science and technology, medical innovation, mechanical engineering, human ethics and philosophy.

Three presenters, all of whom are disabled, will consider Baroness Meacher’s Assisted Dying Private Members Bill from very different perspectives and viewpoints. Each presenter will test the arguments for a change in the current law and whether the proposed legislation stands up to rigorous public safety standards.

Dr Peter Scott Morgan

http://www.scott-morgan.com/blog/right-to-thrive/faqs-about-right-to-thrive/. Peter is the world’s leading robotics and AI scientist who was diagnosed with the severest form of MND ALS and given 2 years to live. 4 years later, Peter will show-case his new inventions and solutions which challenge commonly held beliefs regarding terminal Illness. Amongst them he will demonstrate a sophisticated avatar, which has given him his voice and expression back, having lost this capability a year ago when he became motionless as a result of MND. His work is gaining great traction globally as a result of his recent book, documentary and 2020 launch of the Scott Morgan Foundation: https://www.scottmorganfoundation.org/our-story.

Dr Mario  Griffiths https://en.wikipedia.org/wiki/Miro_Griffiths. Miro is a Leverhulme Research Fellow at the University of Leeds, who has published on disability policy and politics, and is invited regularly to comment on current social issues. He is a member of the Disability Advisory Committee at the Equality and Human Rights Commission, and advises the UK Department of Health and Social Care on improving disabled people’s access to health and social care provision. He is a former strategic and confidential adviser to the UK Government and European Commission. Miro has Spinal Muscular Atrophy, which is a progressive condition that causes muscle strength deterioration throughout the body.

Philip Friend OBE Hon DSc

https://philfriend.co.uk/. Phil contracted polio as a child and is a wheelchair user. He is acknowledged as one of the UK’s foremost consultant on disability matters. He has worked on disability and diversity projects in Estonia, Romania, Poland, Germany, Canada and the USA. He was awarded an OBE in 2001 for services to equal opportunities and disabled people and made an honorary Doctor of Science (Hon DSc) in 2009 in recognition of his outstanding contribution to equality and diversity from University of Hertfordshire. He is the current chair of the Research Institute for Disabled Consumers and Vice Chair of the Activity Alliance.

Baroness Campbell of Surbiton http://baronesscampbellofsurbiton.uk/. Baroness Campbell of Surbiton is a Cross Bench Peer and Founder of Not Dead Yet UK (NDYUK) www.notdeadyetuk.org. NDYUK is the leading organization of disabled people and those with a diagnosed progressive and terminal medical conditions campaigning against a change in the law on Assisted Suicide.

Please email sophiej.clarke@parliament.uk and you will be sent joining instructions for the meeting.

Yours,

Danny Kruger MP

Categories
Assisted dying assisted suicide Disability Meacher Bill

Lies, Damned Lies and Statistics

In a recent quote, DiD suggest that 88% of disabled people support assisted suicide. We asked for the data to analyse the reliability of the claims. Zeynab Al-Khero our researcher concluded the data set is small and has a number of other flaws.

The research data was based only based in Scotland and involved a total of 243 people who identified themselves as disabled. Without a clear definition of disability, DiD cannot claim the poll is the view of disabled people nationally. If we look at the term ‘disabled’ the study is based on only 87 people. It is estimated that Scotland has a million people who define themselves as disabled. The DiD survey could hardly be described as “statistically significant”.

It’s also worth noting that this was an online survey. Glasgow Disability Allowance’s COVID research showed that 60% of disabled people were experiencing digital exclusion. This means those who were able to complete the DiD online survey are not representative of the vast majority of disabled people who are disconnected from peers, services and supports.

Baroness Campbell of Surbiton- Founder NDYUK said, “We always knew this was not a true reflection about how disabled people feel about the legalisation of assisted suicide. The numbers in this survey aren’t robust enough to make general statements about what disabled people do or don’t want.

Not Dead Yet have over 2000 disabled supporters, and more join our campaign every week. I think this speaks for itself. Not one organisation of or for disabled people actively campaign for a change in the law. Why do you think this is?”

We remain extremely concerned that any change to the current legislation opens the door to new risks for disabled people, as demonstrated by the changes in the law in other jurisdictions around the world (e.g. Canada and the Netherlands.)

Disabled people want properly resourced help to live, not to die. Assisted dying legislation, as proposed by Baroness Meacher, is ‘paving legislation’ in other words paving the way for future widening of the criteria to people whose medical diagnosis and prognosis are not terminal. For example, disabled people with physical, sensory, or mental health and learning disabilities.

You can help fight this attempt to change the law on assisted suicide by contacting your MP. If you need our help to do this, contact us at admin@notdeadyetuk.com

 

 

Categories
Assisted dying assisted suicide Meacher Bill

Evidence of a Slippery Slope?

Supporters of our campaign to resist a law change on assisted suicide have continually expressed real concerns about the concept of  “a slippery slope”. The idea that once assisted suicide is permitted for one group it isn’t long before it’s extended to include other groups and that this is a bad thing. Our opponents have argued that this is simply not true, that a slippery slope does not exist.

Let’s briefly examine what has been happening in Canada.

In December 2015 – the Quebec Province in Canada (a regional government) passed the Act Respecting End of Life Care, which permits Medical Aid In Dying (MAID).

June 2016 – The law was extended to other Provinces and Territories, making Quebec’s law legal across the whole of Canada. It prioritises mentally ill and vulnerable people and those who have a grievous or irremediable medical condition, including people with an incurable illness or disease, and disabled people.

https://en.wikipedia.org/wiki/Euthanasia_in_Canada

In March 2020 – the Canadian courts (nationwide) extended the law to include the following:

  • Removal of the requirement that death should be reasonably foreseeable
  • Only one independent witness to request for MAID
  • A personal or health care worker may be a witness
  • Removal of 10-day period for reflection
  • The waiver should be given in advance

On 17 March 2021 – the Canadian legislature expanded MAID to a broader group of people:

  • A person does not need to have a fatal or terminal condition to be eligible for MAID.
  • Mentally ill patients can give an advanced waiver to sign off for MAID before they are compromised by their condition.

https://www.canada.ca/en/health-canada/services/medical-assistance-dying.html

The numbers of people assisted to end their lives in Canada are consistently growing year on year:

https://bit.ly/3glUlmp

The Canadian Government now propose that in March 2023 it plans to give patients with mental illness alone and no other underlying issues the option for a MAID.

Within six years the scope of the assisted suicide legislation in Canada has been amended twice with further amendments planned. More people are now eligible, the death rate is increasing and the protections have been weakened we’d call that a “slippery slope”.

 

Categories
Assisted dying assisted suicide Disability

Noel Conway Dies

It was announced on Friday that Noel Conway has died. We send our sympathies to his family and friends at this sad and difficult time.

Mrs Conway said he had died at home on Wednesday after deciding with his family to remove his ventilator.

She said his carers “ensured that Noel had a painless and dignified death, demonstrating empathy and concern for us all”.

Mr Conway who had motor neurone disease campaigned to have the law on assisted suicide changed. He argued that he wanted to decide on the time and manner of his death and that being assisted to die would ensure this wish. His appeal was defeated in 2018.

Baroness Campbell said “We were sad to hear of the death of Mr, Conway but pleased to hear that he died peacefully with his loving family, supported by palliative care. NDYUK campaigns for proper health and social funding and support for people at the end of their  life.”

 

Categories
assisted suicide Disability

The only proper safeguard is no law change.

Not Dead Yet UK is determined to resist a change in the law on assisted suicide. We believe that it is not possible to provide adequate safeguards to protect the lives of disabled people. We are also deeply concerned that an alteration in the law would inevitably lead to further changes that would put even more disabled people at risk, the “slippery slope” effect.

By way of example, look at what has happened in the Netherlands. Euthanasia in the Netherlands was legalised in 2001 for mentally competent adults 16+ with unbearable physical pain and no prospect of cure also children aged 12 to 16 with parental consent.

In 2006 the Groeningen protocol enabled euthanasia for infants under one year old with parental consent.

In 2008 unbearable physical pain limitation extended to psychiatric pain.

In 2016 euthanasia for mentally incompetent patients began for dementia patients with an advanced directive.

2016 saw a public debate began about people who lived a complete life and in 2017 a draft law was published for euthanasia on request for people aged 75 and older.

In 2020 a draft law was placed before the Dutch Parliament, which proposed that euthanasia should be available for anyone 55yrs or older. This is also being considered for children under 12yrs who are physically suffering.

In Oregon, USA it has been legal for terminally ill, mentally competent adults to have an “assisted death” since 1997. Dignity in Dying (DiD) formerly the Voluntary Euthanasia Society asserts that “there have been no cases of abuse and the law has not been extended beyond terminally ill adults.

These personal stories beg to differ.

Barbara Wagner Oregon, USA

The 64-year-old woman with lung cancer had been in remission, learned the disease had returned and would likely kill her. Her last hope was a $4,000-a-month drug that her doctor prescribed for her, but the insurance company refused to pay. What the Oregon Health Plan did agree to cover, however, were drugs for physician-assisted death. Those drugs would cost about $50.

“if you want to take the pills, we will help you get that from the doctor, and we will stand there and watch you die. But we won’t give you the medication to live.”

Jeanette Hall Oregon, USA

Diagnosed with cancer in 2000 and told she had six months to a year to live. She knew about the assisted suicide law, and asked her doctor about it, because she didn’t want to suffer. Her doctor encouraged her not to give up, and she decided to fight the disease. She underwent chemotherapy and radiation and 20 years later Jeanette Hall is still alive. “I am so happy to be alive! If my doctor had believed in assisted suicide, I would be dead. Assisted suicide should not be legal”

Kathryn Judson Oregon, USA

She wrote of bringing her seriously ill husband to the doctor in the hope of getting the much-needed help and care he deserves but in a harrowing form of events overheard the Doctor giving her husband a sales pitch for assisted suicide and how much of a burden he must be on his wife.
“I was afraid to leave my husband alone again with doctors and nurses”

Roger Foley Ontario, Canada

Has cerebellar ataxia, a fatal neurological disorder that limits his ability to move his arms and legs. He launched a landmark lawsuit alleging that health officials would not provide him with an assisted home care team of his choosing but instead offered him an assisted death.
“Persons with disabilities have to initiate very lengthy and onerous legal procedures to get their rights recognised,”

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